Well after a week of ups and downs, today may be the start of some steps in the right direction. After being extubated on Thursday afternoon and going straight to a sipap, the thoughts by the doctors were that after a day or so she would be turned over to cpap and then high flow o2. Of course Mallory had other plans. Her friday morning x-ray showed some "fluffiness" in her left lung so they decided to keep her on sipap and continue with lung conditioning and recheck the next day. We were able to hold her that day and although we enjoyed it, she seemed to not tolerate it as well as lying in her bed. Her o2 sats continued to drop and another X-ray was ordered, showing both the left and right lungs were "fluffy". Also, talks about the function of her diaphragm continued. All things to make us worry and start asking more questions. Saturday was another day of continuing on the sipap, dropping sats and lung conditioning. We were able to hold her again, but we enjoyed it more than her as she didn't tolerate it well. So that brings us to Sunday...when we walked into the room they were doing the echo cardiogram to check the function of her diaphragm. We were also told that her sats would drop off/on throughout the night and that she also had a fever and they have started antibiotics. Good news is that the echo showed the shunt and the diaphragm are both functioning as they should. Also, today her sats have stayed in the 70's all day. First time since she has been extubated and no more fever! They have lowered her o2 on the sipap to 45% which is the lowest it's been since she started Thursday. So I consider this to be a pretty good day. Progress not perfection is our motto now!!